After a lot of waiting, possible progress…

I’ve sort of not had much news on our IVF journey since the miscarriage in July. 

In summary: We had our first round of IVF on the NHS resulting in a positive pregnancy test! Unfortunately this ended in miscarriage in July. During the miscarriage they found that I had a fibroid, pretty much smack bang in the middle of my uterus. The doctor and nurses told me this might prevent pregnancy. 

The way I dealt with this was mainly to realise that there wasn’t anything I could do to change the situation. (And as my dad always says, there’s no point worrying about things you can’t change!)

All we could do was wait. And finally this weekend I got a little bit of progress. 

I’m insured with BUPA (health insurance) through work. In the uk, healthcare is “free” on the NHS (the National Health Service, paid for through contributions from everyone’s salaries). The NHS is fantastic – and I’m very grateful that we qualify for 3 cycles of NHS funded IVF. I also got treated at the NHS EGU (Emergency Gynaecology Unit) for my miscarriage, which is where they highlighted the fibroid. However the NHS waiting times can be very long. They found the fibroid in July and my NHS appointment is in October. 

I finally after a bit of wrangling with Bupa managed to get a private consultant appointment with a gynaecologist this weekend. I went to see him yesterday (Saturday). Let’s just say their hospital was swankier than our local hospital!

He did a scan and found that there was a fibroid as was previously identified. And he said that it might be the cause of my infertility. (I expressed some surprise that I might have had one for 15 years or whatever, but who knows?) He agreed it needed to be treated before we had another round of IVF. 

He could do it next week! But we are at a wedding so can’t do it then, so it looks like it might be in two weeks. This is really quick compared to the NHS target of 18 weeks to get treated. (I don’t blame the NHS at all for this – it’s why we pay for private health insurance, so we can get access to more expensive treatment when we need to.) So – subject to some confirmations, I may have this little spirit-sapping fibroid out of me in a couple of weeks. That’s good news!

I also finally got through to our IVF clinic and they said they will book us in for November – I don’t know if this will ever happen, but I’m hopeful. I kind of felt a bit unhopeful when we found out about the fibroid because I knew we wouldn’t be able to start IVF before the fibroid was sorted out. So at least there’s a possible timeline there. Another thing I’ve realised is that other countries seem to do a lot more testing during IVF, such as PGS, whereas we don’t, at least not in our clinic. I assume this is an NHS thing – for example they won’t investigate losses until you’ve had three, I suppose because of economics. 

They must have done the maths and figured out, for the money, that IVF works more often than PGS prevents miscarriage… I really wish they did do it but I suppose it would be prohibitively expensive. T thinks we should do our three rounds of IVF on the NHS and then if it hasn’t worked we try a private one where they’d do more testing. Just the thought of another three cycles is kind of depressing… I just hope that the next cycle works.

Anyway, it’s a small sign of progress on our IVF journey when we haven’t had news for ages. I still have my NHS appointment booked for October so if the Bupa operation doesn’t happen then I’ll still go for that. Really I am a big fan of the NHS but going private means you can skip some of the waiting – the system is very overburdened. I still have to pay for private health but it is part of my flexible benefits at work so I don’t really notice it coming out of my salary every month. I was actually tempted to stop paying for it next year because they never seem to allow you to claim, so the fact they’ve taken about two months to let me see a gynaecologist is a little bit of progress.

All we can do now is be hopeful. And concentrate on maximising happiness in the meantime!

This week I’m making a wedding cake for my friend, before attending their wedding. So I’m going to focus on someone else’s happiness for the time being! She’s a lovely person who I only met a year ago. She’s been through a lot, being a cancer survivor, which I only found out when she mentioned it was her anniversary of remission. Pretty cool. She’s one of the most friendly people I’ve ever met. And this weekend she’s been having a bit of a crisis of confidence because she’s worried about not looking lovely enough in her wedding dress. 

I told her she will look lovely because she will be happy. And I remembered this Roald Dahl / Quentin Blake quote that I read as a child, and have always believed…

  
I know she’ll be a beautiful bride because she is lovely and happy and has good thoughts. And I hope I can make a cake worthy of celebrating the marriage of two very lovely people!

And for us: I sometimes think I’m fatter than I want to be. And I often think that I’m not quite the person I want to be. I try to be nice and sometimes beat myself up a bit in retrospect when I think of things I could have said or done differently. But ultimately I’m bloody grateful that we have what we have: I count my lucky stars every day. (The stars are shaped like T and Dog and my family who are unconventional and lovely at the same time!) I figure those happy thoughts have to go some way to smoothing out the imperfections. 

Here’s to happy thoughts this week.

Advertisements

34 comments

    • Nara

      Thank you! Well here’s hoping it isn’t another few months. He seemed to think it could be done really quickly.

      I love Roald Dahl too! He’s just amazing. So many great books. And I always associate Quentin Blake’s illustrations with him!

      Liked by 1 person

  1. My Perfect Breakdown

    I am so excited that you managed to get into a doctor and you can have surgery to remove the “little spirit-sapping fibroid” from you!! And then hopefully your next pregnancy is THE one.
    And your friend sounds beautiful and amazing! I’m so excited that you are making her cake, I’m sure it’s going to be amazing. 🙂

    Liked by 1 person

    • Nara

      Thank you! I’m a little nervous how I’m going to get it done in the time available – the other times I’ve made cakes of that size, I’ve taken two days off to do them. I’m going to have to be quite regimented in my planning this time and not take time off to watch tv! 🙂 (I don’t have enough holiday to take more days off as the wedding’s on a weekday too.)

      I am really hopeful about the fibroid… Who knows?! The doc seemed to think this could be the reason for my infertility. Although that seems hard to believe when it is so small. He measured it at 5mm and previously it was measured at 15mm – I questioned this and he said it is patchy on ultrasound and you can’t really tell till you get in there. But worth a shot anyway!

      Like

  2. theskyandback

    Love this post. You sound so happy and hopeful. Your fibroid really could be the cause of your infertility, and once you have it removed — boom, healthy pregnancy. Your friend sounds wonderful, and I love the Roald Dahl quote!

    Liked by 1 person

    • Nara

      Thank you! I’m struggling somewhat on a Monday morning but we just have to keep chugging along. I’d love to have the boom… We shall see! 🙂

      Like

  3. countyourselfunlucky

    Some great news! Re: PGS testing – I was all for it but my latest doc thought embryoscope would be a better option as it is less invasive and much cheaper, so we’re going to try that and think about PGS on a later cycle maybe. Do you have the option of embryoscope? Good luck & great Roald Dahl quote 🙂

    Liked by 1 person

    • Nara

      Thank you! I’ve never heard of embryoscope. We don’t really get much testing here – they just have a look and grade them and do a day 3 or day 5. Ours was apparently a good grade but we only had one and didn’t have any other testing – I suppose it is down to the costs as we have it on the NHS, so take what we’re given. I’m not sure but just get the idea that they’re more invested in success when going private (plus maximising profit) so probably do more tests. I did ask but they don’t generally test on the NHS in our area.

      Like

  4. countyourselfunlucky

    Embryoscope is like an incubator with CCTV (that’s how my doc described it) so embryos can be monitored continuously without being disturbed (so minimises the risk from taking them out to look at them & gives a continuous idea of development). We’ve not done it before but because we’ve got through so many embryos without success we want more answers about quality. Previously docs have advised us to not bother because they thought that our failures could be no more than bad luck. Latest doc said that to do PGS you also need to do ICSI so costs as much as another fresh cycle (eeep!) Plus there is the risk of doing the test damaging the embryo (because they remove a cell). So pros and cons to these things. It’s nice for us to have the option but I imagine the more information I have the more questions I’ll have!… it’s a shame you don’t get the option but hopefully with your fibroid removal you’ll improve your chances of getting pregnant again. Good luck 🙂

    Liked by 1 person

    • Nara

      Thank you! We do get the chance to do ICSI but it wasn’t advised for us. Might happen on our next cycle as I think they do it if they think there is less chance of success… I’m not sure. I was always a bit worried about ICSI as it seemed intuitively less “natural” (I mean how do they select best sperm?) but since learning more about it I think it could be a good option. However I feel we won’t get much choice unless we go private. We will try the other two “free” cycles before going private purely because of the cost. Embryoscope sounds cool though! 🙂

      Like

      • countyourselfunlucky

        Yes absolutely that’s great you get 3 free cycles – it gives you a chance to save for private treatment and gives you more info about what is / isn’t working for you (although hopefully it will work on NHS). That way if you have to go private you can totally gold plate your cycle!

        Like

      • Nara

        Ha! Hopefully. It’s very expensive here although not sure how it works out in dollars. It’s at least £5000 here which seems so much especially when we want to try and buy a house. We are very grateful for the opportunity to get treated on the NHS – just hopeful that it works! It’s a lot to put your body through. I don’t know how people do it again and again.

        Like

    • Nara

      Thank you! It’s just been confirmed for next week so that’s great news. I’m one of those weird people who likes surgery as it makes me feel something productive is happening!

      Like

  5. Courtney

    I’m so excited that you’re getting that fibroid taken care of so soon! I am shocked it went undetected for so long and that the NHS did IVF without knowing it was there. I’m sort of angry, being honest, that they wasted your time, a cycle, and pizza baby on a uterus they should have known had a fibroid. It’s kind of a big deal. Gah!

    But yay for moving forward!!!!!

    Liked by 1 person

    • Nara

      Ah, thanks my dear. I do think they thought “something” was there but didn’t know what and didn’t think it would affect it. It’s all very confusing! I can’t think a tiny fibroid would cause 15 years infertility but the doc seemed to think it might have – he was a bit “you never know” about it. Anyway I do feel slightly better thinking there is some sort of movement forward!

      Like

  6. Pingback: A kick in the teeth | From zero to zygote
  7. thegreatpuddingclubhunt

    This is great news!!! Bye bye fibroid!! What’s the point of paying for Bupa when you have to jump through so many hoops to find out things are not covered!! But really pleased for you that they can remove the fibroid AND get to do another round sooner!!

    Like

    • Nara

      Yeah I know… I still have to pay a £100 excess but it seems worth it to jump the queue. They make it difficult to claim! Hopefully after next week I’ll be more fertile!

      Like

  8. Pingback: A wedding and a holiday | From zero to zygote

Tell us your thoughts...

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s